世界中医药

目的：从患者角度，深入了解多发性硬化症状波动对患者的影响，以及患者对中医药治疗多发性硬化的理解等方面。方法：本文采用半结构化深度访谈的定性研究方法，利用扎根理论对访谈资料进行总结分析。结果：研究结果发现多发性硬化症状波动可导致疾病症状、伴随症状、其他症状等多层面的不适，并且给患者带来无奈、急躁、恐惧、压抑、无助等心理变化，反之心理变化又加重患者症状的自我感受，自此恶性循环；患者所体会的中医药疗效主要在改善症状、稳定疾病活动、整体调节等方面。结论：针对多发性硬化，应当增加侧重以症状、心理、患者自我报告结局的评价维度，以全面且公正地评价多发性硬化疗效以及中医药对多发性硬化的疗效，制定以患者为中心的个体化诊治策略。

English Summary:

To have an in-depth understanding of the effects of Multiple Sclerosis(MS）symptom fluctuation on patients，and their understanding towards TCM treatment of MS from the viewpoint of patients themselves.Methods:The qualitative research method with semi-structured in-depth interview was adopted，and the grounded theory was utilized in the summary and analysis of interview data.Results:It was found that fluctuation of MS symptoms can lead to disease symptoms，accompanying symptoms，other symptoms and other discomfort in various aspects，which can result in psychological changes，such as frustration，edginess，fear，depression and helplessness，etc.And the psychological changes can in turn aggravate patient's perception towards the MS symptoms，which becomes a vicious circle.The effect of traditional Chinese medicine is mainly in the improvement of symptoms，stabilization of disease activity and overall regulation from patients' experience.Conclusion:The evaluation dimension of MS outcome should be more focused on symptom，psychology and patient's self-report.The evaluation of the curative effects of MS and the therapeutic effects of TCM should be comprehensive and fair.Meanwhile，patient-centered，individualized treatment strategies should be made.

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